Saturday, October 2, 2010

Steve & Libbie Arrive

Our days are starting to get into a routine - with the exception of who our visitors are for the day.

After being up every 1-2 hours last night, Dad slept from 5:30 AM to 8:30 AM.  It takes quite a while for the morning routine, as he moves all his limbs around, swivels his back, takes his pills, gets cleaned up, etc. etc.  He used his walker to get to the living room, then sat down for a breakfast of cantaloupe and French toast.  We found another big bruise on Dad - approx. where his fractured rib is - and it is the size of a person's hand.  We have no idea what caused it.

He took a little snooze, then Libbie and Steve arrived about noon, being nice enough to call ahead and ask if we needed anything from the grocery store.  Dad was asking for SOS (chipped beef on toast) so they picked some up, as well as ice cream and some frozen dinners.  Libbie also brought a cooler full of groceries - Honey Baked Ham, spaghetti sauce and pasta, and I'm sorry but I'm drawing a blank on her other goodies.

We had leftovers from our previous night's dinner (corned beef, cabbage, potatoes, carrots) for lunch, and Dad ate a good bit.  His snack was another Creme Horn, and later Jello and whipped cream.  Even with a lot of college ball on tv, he took another nap.

Molly stopped by to say hello.  She was on her way to Dinner Club, without her hubby who had gotten called into work.  The boys were home with their wonderful sitter.

Dinner was the ham, sweet potatoes, tortellini salad, beans and rolls.  Once again, immediately after dinner, Dad was ready for bed.  We had a bit of a late dinner, and tried to draw out the bedtime, but by 8 PM Dad was all snug in his bed with the UGA game on the radio.  I turned it off 20 minutes later, as he had fallen asleep.

Dad says he does not feel well, and said he had a headache tonight, but at other times (especially after eating) he says he feels better.  He was awake more today than yesterday, I'm sure because Steve regaled him with stories and Libbie kept a lively conversation going.  We've warned Steve & Lib that Dad will be up often, but they can nap when he does tomorrow.

Friday, October 1, 2010

Up and Down

Yesterday was up the ladder, today was one step forward and a half step back.  The step up is that Dad's arm continues to improve.  He has much less swelling and a little more range of motion.  It looks as though he was hit by a car, but there was a bit of improvement.

Otherwise, he had a slightly down day.  We woke him up at 10:30 when Charisse arrived.  He had been up 6 times during the night, then slept soundly from 6:30-10:30 AM.  He was very grateful for Charisse's bath, shampoo and shave, he put on clean clothes and used his walker to get to the living room.  The effort exhausted him.  He had a good breakfast and felt a touch better, and fell asleep.  Dad just wasn't feeling well, but had no specific complaints.  He slept most of the day.

Dave made corned beef and cabbage in the crock pot with potatoes and carrots for dinner.  Dad ate a small portion of each, but all together it was a good plate full.  He even had ice cream and chocolate sauce for dessert, then wanted to head to bed again.

We've been a little concerned about his sleeping routine, as he is up every 1-2 hours at night, but can sleep 3-4 hours at a time during the day.  We don't know if it is because his chair is more comfortable than his bed, if something presses on his bladder while in bed, or ???  The visiting nurse came today and we reviewed his meds and this sleep problem.  She thought perhaps his constipation bothers him more at night.  Maybe he will sleep better tonight.  Dave is staying with him, and I am home.

Geoff called and Dad was very glad to talk to him, but felt badly that he didn't have more to say.  His brain is working quite well, but he is very slow to answer questions or make decisions.  Tonight I read him a story about Meriwether Lewis (of Lewis & Clark fame) from the Wall St. Journal - his descendants want to exhume his body to see if it can be determined whether he committed suicide or was murdered.  When I got to the part about Lewis having two bullets in his body, one in the chest and one in the head, Dad said, "I always wondered about that - why would a marksman like Lewis need two bullets to shoot himself?  And how could someone shoot themselves twice?"  I had never even known there was a mystery about Lewis' death, much less that it was from a gun.

I made a comment yesterday about how we kids would joke that when Dad was driving, the car automatically turned into bakeries, when Mom was driving it would turn into antique shops.  Dad said, Yes and my favorite snack was Creme Horns.  Today, Dave was going to buy some more sheets, a thermal cup, etc. and asked Dad if he needed anything.  Dad said, See if you can find some Creme Horns.  Thank goodness, Dave found some!  Dad had a Creme Horn and a milkshake for his snack.  The brain is good!  Just a little slow these days.

Posting Problems

I'm having wifi-internet problems.  "Climbing Up the Ladder" was Thurdsay evening's (9/30) post.

Climbing Up the Ladder

When Dad woke up after his morning nap, he called, Is anyone home?  I went in to see him, and he immediately said he feels better and is "climbing up the ladder."  He had a pretty good day, eating a big breakfast, a light lunch, a milk shake and potato chips for a snack (there's still part of me that says, No No No, but I silenced it), and an egg, bacon, toast and grits for dinner.  Dad had slept most of the morning after being up every hour from 1:30-5:30 AM.  That of course meant Jon was up, too.  Dave and I came over about 8 AM, and woke them up.  We didn't mean to!  We have to create a code for "C'mon In" otherwise Stay Out, We're Sleeping.

Jon left today and I can't even think about it without getting tears in my eyes.  He is so good with Dad.

Dave took Jon to the airport and did errands and grocery shopping on the way home.  I brought my ironing over and made a good dent in it while Dad watched TV.  He was sleepy, but I kept trying to talk to him, as did Dave, to keep him awake.  I really hope he sleeps through the night tonight, or at least with fewer interruptions.  He has had his pain pills, eye drops, and we added an anti-anxiety pill to help stop the nightmares.  He doesn't really talk about them, but he did tell Jon one of them was about pirates.  Hmmm I think this is payback for all the pirate stories he and Uncle Jack used to tell us when we were kids.  I have to say I don't remember them as being scary, though, just very adventurous.  He and Jack were great story tellers, but I'm sure all you Green kids will remember that Grandpa was the best!  All those stories about Brer Rabbit were my favorites.

It was a quiet day today - no outside appointments and no visiting nurses.  Cherisse comes tomorrow, Dad will be glad to know.  We've asked her to come twice a week, though Dad may want to opt for 3 times.  We'll see.

Molly dropped by to say hello.  I had been telling her I can't remember anything unless I write it down, and that I brought a notebook here so I won't forget when I gave Dad his meds, or anything else I need to track.  She brought me an At-A-Glance calendar/notebook, with 2 days per page and lots of writing room.  Their slogan is: Plan, Write, Remember.  Thank you Molly!

I think Dad is trying to sort out his future.  Is it possible for anyone?  This morning he was talking about dying - how he can't believe he didn't die in the last few days.  I said you must still have something to do here on earth.  He said, I guess so.

Dave made a ramp for the wheelchair this afternoon.  There is only one step between the house and the sidewalk, but it is still hard to navigate with a chair.  Dad heard the banging and asked about it.  When I told him about the ramp, he said, I'm not going to need that chair very much longer, I am climbing up the ladder!  I'm very relieved he is feeling much better.

And on that note, I'm going to try to fall asleep early.  I have a feeling I'll be up early early tomorrow.

Wednesday, September 29, 2010

An Uptick

I was so relieved that we had no doctor appointments today and we did not have to get Dad in and out of the car, wheel chairs, etc.  His fractured hip is a major concern, as any further break would be devastating.  We even wheel him from his bedroom to the living room, just to avoid extra pressure on the hip.  Also, his right arm is in a sling, so he can't put both hands on the walker.

He said he felt a little better this morning, and again as he was eating dinner.  His breakfast and lunch were very light, but he ate a slightly bigger dinner of beef tenderloin, mashed potatoes and gravy, sauteed squash and onions and a salad.  They were small portions, but that's the biggest meal he's had in a week.  He said he had no room for dessert, though if he wakes up later, I'm sure Jon will satisfy that sweet tooth.

Another very positive thing that happened today was that Cherisse, a visiting nurse assistant, came.  Dad asked her how old she is, as she looks young (38) and he told her at least 5 times she has to be careful with his arm.  She has 17 years experience but was not the least bit huffy that Dad was coming across as though he didn't trust her.  I am sure, with her experience, she's run into that attitude before.  By the time his bed bath was over, Dad was in love with Cherisse.  He commented, She really knows what she's doing!  He was washed from head to toe, shampooed, and dressed in clean clothes.  Jon had shaved him yesterday, and he looked nice and fresh.

We moved Dad into the living room so we could change the sheets.  He reclined in the Big Blue Chair, and immediately fell asleep.  All that moving around exhausted him.  His housekeepers arrived and they did their magic, including vacuuming all over the living room, under the footrest of his chair, and he slept through it all!  Oh to be able to sleep that well!

Jon and I had taken a short, 30 minute walk, and I was overdue for my shower.  When I came back all clean, into the clean house with a clean Mr. Green, it felt wonderful.  I filled a basin with warm water and epsom salts, and Dad soaked his feet.  Jon got out the clippers and cut Dad's toenails.  Thank God for Jon!!!  I can do all the duties when I need to, but Jon takes care of so much when he's here.  Plus, I get to sleep at home while he is here.  That will change tomorrow when he leaves.  Boo hoo (about Jon leaving, not sleeping here at Dad's).

Dave also is such a tremendous help.  He made a fantastic dinner tonight - beef tenderloin, sauteed squash and onions, and a great salad.  He has been cooking up a storm and I am so appreciative.  Plus, he's been running all the errands.  I could not do this by myself!

Dad's pills from Hospice arrived today, and it took me about an hour to read the instructions, make a simple chart, then rearrange it according to the timetable of what Dad needs to take when.  Dad's two biggest worries are his eyesight and pill management - if we are giving him the right pill at the right time.  I am sure that concern is exaggerated by the fact he can't see the instructions for himself.

We did more furniture rearranging today.  When Dad wakes up at night, he wants Jon to stay with him (he's been having nightmares) so we moved a loveseat into the bedroom.  At least Jon (or whoever is here) will be able lie down until Dad goes back to sleep.  Jon called the Hospice nurse and told her about the nightmares and anxiety, so we will get yet another miracle drug to help relieve Dad's anxiety.  We want him to sleep well, and to be as strong and alert as possible during the day.

Dad was in a much better mood as he was being tucked in tonight.  He is very appreciate of our help, he had a good dinner in his Buddha belly, and there was a place for company (the loveseat) if he wants it during the night.  We will take the small joys!

Tuesday, September 28, 2010

Finding the Balance

It was another very busy day.  This evening Jon asked what we had planned for tomorrow. I said "Nothing!"  He said, "We need to do something - maybe we can get Dad out for a ride - on a golf cart?  a pedicab?"  He is a bundle of energy.  I don't think Dad could stand the bumps on a golf cart right now.  Not that we have a golf cart, but we'll be thinking of something!

This morning Jon was up at 6 AM as Dad had an 8:30 AM consultation with the radiologist.  Dave went over to help later, and I took the car over about 7:30.  It was not to be.  Dad just was not feeling well enough to get out of bed.  He had a tiny bit of breakfast then back to bed it was, sleeping on and off.  The Hospice Social Worker arrived about 10, and had a list of things to cover, including what services Hospice can provide in a hurricane evacuation, visits from clergy, a ceremony to honor veterans, and assistance with funeral arrangements.  It was not an easy visit, but necessary.

Just as she was leaving, the Hospice visiting nurse arrived.  She spent quite a bit of time here, first discussing Dad's meds and care and answering questions from Dave and me (Jon was with Dad in his bedroom).  Then she went in to see Dad and talked to him for quite a while, asking about his pain and nausea.  She checked out all the equipment and thought it was good for now.  She said Dad will more than likely need oxygen in the future, but he is having no breathing issues now.

She will be ordering all his meds from now on, and they will be FedEx'ed to us, so no more trips to the pharmacy.  Hooray.  Hospice has been extremely helpful.

Dad is currently on Oxycodone but when this prescription is finished in a little over a week, he will be switched to morphine.

We went to the eye doctor for the injection to dry up Dad's eye.  Hopefully the retina has not become detached, though it's hard to tell at this point.  Dad can barely see anything out of his right eye.  I was thinking he had the same problem in both eyes, but no, the right eye is potentially fixable, but the left eye is not.  He handled it like a champ, as did Jon who has had a similar procedure.  I had to leave the room.

In the meantime, Dave was shopping for and ordering more equipment.  He ordered a landline as Dad's cell doesn't work well in all areas of the house.  He also picked up a booster for our wifi so computers and iPads will work better at Dad's.  Now whoever is staying with Dad can be fully connected.  It's about time to come out of the black hole as Jon says.

Dad's attitude seems to be remarkably calm, and accepting of what is to come.  He has said several times 86 is a long life and he told the nurse he does not want any extraordinary measures taken to preserve life.  Of course this news about his cancer is a total shock to all of us.  The speed of him having problem upon problem seems to be fairly unusual according to the doctor and nurses.  There is a good chance he will plateau and stay at a certain level of health, but no one knows what will happen.  I have to say he is overwhelmed at this point, with a new bed, strangers coming to talk to him, a multitude of doctors and appointments, long times in waiting rooms, and new medications.  As it would be for anyone!!

We doubled Dad's pain meds today, and they really helped, but the downside is that he is sleepy and not as clear headed.  I asked the nurse about it, and she said your body adjusts after a few days, and the drowsiness should lessen, but you don't want the pain to come back.  It's going to be trial and error, trying to find the amount of drugs that allows the least amount of pain and the most awareness.  We'll keep working on finding the balance.

Monday, September 27, 2010

Dem Bones

Jon and I left to take Dad to the orthopedist before the Hospice gear came, so it was a nice surprise to see how Dave arranged everything by the time we got back.  Jon and Dave had moved Dad's bed into the spare bedroom, and Dave had the hospital bed put in its place.  We also received a table and bedside commode and soon we'll be getting a wheelchair.

Naturally, Jon wanted the room to LOOK nice, not just function well.  He was covering up the nasty (clean but ugly) side bars with a coverlet.  He joked about making a bedskirt.  Love it.

Dad had to have yet more Xrays at the orthopedist's office.  Now we know he did not break or fracture his shoulder, but he has a huge hematoma that has caused swelling from the top of his shoulder down to his elbow.  It is bright red and dark red.  It looks awful and is very painful.  What a relief that nothing was broken.  The doc said he may have torn a ligament.  That was the good news.

The bad news was that the abnormality in Dad's hip is a fracture.  The doc wants Dad to stay off his feet, as he has the risk of breaking the bone under pressure or in a fall.  He said he would like Dad to have an MRI so he can think about putting pins in the hip to hold it together.  We told him we have some other issues to deal with, like reducing the shoulder pain, starting radiation and getting his eyes cleared up, and I need to speak to Hospice about the order and timing of all the things that need to be "fixed."  He suggested getting him a wheel chair and wrote a prescription - so Medicare would pay for most of it.  We are to call him back after we talk to the eye doc about his recovery and ability to get around (for the MRI).

I called Hospice when we got home.  They ordered the wheel chair and got their doc's permission to double the pain meds.  A nurse will visit tomorrow to assess Dad's needs, and perhaps bathe him.

Jon gave Dad a malted milkshake as soon as we got home.  Dad immediately fell asleep and slept for a couple hours.  He woke up for dinner - half a taco - then wanted to head for bed.  He FINALLY was able to move his bowels, and boy are we all happy.  It exhausted him.  It took a few tries to get adjusted in the new bed, but we think after all the exertion and more pain meds, he has fallen asleep again.  Let's hope he, and Jon, get some sleep tonight.

The tally:  Cancer everywhere, fractured rib and hip, torn ligament and hematoma on his shoulder, bleeding behind his retinas, constipation, and general malaise.  Hospice is all about making their patients comfortable, in their own homes, and that is our goal for Dad!

Jon is a huge help in so many ways - from helping Dad with everything, to keeping us laughing.  I was about to make up the bed in the spare room, and he asked if I wanted any help.  I said yes.  He handed me a glass of wine.  :-)

Dave also has done so much when I am so scatterbrained and can't organize my thoughts. He had gone to Tybee to see his buddy Jimmy & family, then called to see if I needed anything on his way home.  I gave him my Kroger's shopping list.  Later I called him back and asked him to pick up a prescription for Dad.  It would have saved him many miles if I had remembered the prescription first - but alas, I am happy I remembered it at all.

Dad is sleeping, Jon is doing the NY Times crossword puzzle on his iPad, Dave is helping, and I am tired.

PS The "posted time" on this blog is about 3 hours off, in case anyone wondered why I'm ready for dinner at 3 pm or other strange timing.